Preview Mode Links will not work in preview mode

SAGE Palliative Medicine & Chronic Care


Oct 11, 2017

This episode features Briony Hudson (Louis Dundas Centre for Children’s Palliative Care, UCL Institute of Child Health, London, UK
 and Marie Curie Palliative Care Research Department, UCL Division of Psychiatry, London, UK) and Linda Oostendorp, (Marie Curie Palliative Care Research Department, UCL Division of Psychiatry, London, UK). They describe their study which aimed to explore how children and young people (aged 0–25 years) with life-limiting conditions or life-threatening illnesses and their families were identified, invited and consented to research published in the last 5 years. The study was a systematic of (quantitative, qualitative and mixed methods) research published between 2009 and 2014, recruiting children and young people with life-limiting conditions or life-threatening illness and their families. A total of 215 studies – 152 qualitative, 54 quantitative and 9 mixed methods – were included.

The study demonstrated that all stages of recruitment in children were under reported. Most studies did not provide information of how children were identified or invited to participate in research. Transparency in reporting of participant identification, invitation and consent is needed to enable researchers to understand research implications, bias risk and to whom results apply. Research is needed to explore why consenting participants decide to take part or not and their experiences of research recruitment. Consequently, future papers should clearly state (1) how eligible participants were identified, (2) how people were invited to participate and (3) why people decide to take part or not. Full paper available from: http://journals.sagepub.com/doi/abs/10.1177/0269216316663856


If you would like to record a podcast about your published (or accepted) Palliative Medicine paper, please contact Dr Amara Nwosu: anwosu@liverpool.ac.uk