Info

SAGE Palliative Medicine & Chronic Care

Want to hear latest research in Palliative Medicine? Want to receive practical guidance to clinical practice in palliative patient care?   Every month, this podcast features an author from Palliative Medicine, a highly ranked, peer reviewed scholarly journal dedicated to improving knowledge and clinical practice in the palliative care. In these focussed 10 minute episodes, the authors provide a personal interpretation of their published work. You’ll hear learn from original papers, reviews, case reports, editorials and other interesting work published in the journal.
RSS Feed
SAGE Palliative Medicine & Chronic Care
2021
September
July
June
April
March
February
January


2020
December
October
August
June
April
March
January


2019
December
October
September
July
May
March
January


2018
December
November
October
August
July
April
March
January


2017
December
October
September
August
July
June
May
March
February
January


2016
November


Categories

All Episodes
Archives
Categories
Now displaying: Page 1
Jun 11, 2021

This episode features Baby Foo (School of Psychology, The University of Sydney, Sydney, NSW, Australia) and Dr Michele Wiese (School of Psychology, Western Sydney University, Penrith, NSW, Australia).

With advancing age and the experience of life-limiting illness, people with intellectual disability need equitable access to effective palliative care. Palliative care staff experience unique challenges when caring for people with intellectual disability, such as communication barriers, which can make it more difficult to address their needs. People with intellectual disability are not routinely included in conversations about their dying and death in primary and residential care settings, unless they instigate these discussions.


This study highlights that specialist palliative care staff do not consistently talk with people with intellectual disability about their dying and death. Conversations about dying and death are influenced by the (1) perceived capacity of the person with intellectual disability, (2) experience and expertise of palliative care staff, (3) the relationship between palliative care staff and dying person, and (4) values of palliative care staff and other caregivers.

Urgent policy and practice changes are required to address misinformation and assumptions about people with intellectual disability, including the development of guidelines regarding communication about dying and death with people with intellectual disability in palliative care. Specialist palliative care services need to prioritise staff training for those working with this patient group, and focus on developing knowledge and skills in communication strategies relevant to people with intellectual disability. Future research should focus on the needs of people with intellectual disability and their caregivers in palliative care across all levels from policy to practice.

0 Comments
Adding comments is not available at this time.